Following up on a successful rally and Lobby Day at the StateHouse in early January, the Pediatric Home Nursing Campaign was featured in a piece by John Keller on the Boston WBZ 4 evening news. Angela Ortiz, the mother of a child with severe medical needs and one of the founders of the family coalition, was interviewed about the nursing shortage and state reimbursement rates that are far below what is needed to attract specialty nurses into home care. See the full piece here
Families Fight For Nursing Care As House Approves Pay Raise For Legislative Leaders
To date, more than 30 representatives and senators have signed onto their family Bill of Rights – The Protection Act for the Continuous Skilled Care of Fragile Children in the Commonwealth. Cosponsors can sign onto the bill through Feb 3. A message about co-sponsorship can be sent through HCA’s website Advocacy Center.
Ms Ortiz, other members of the coalition, and HCA of MA, all testified on the need for higher rates before MassHealth on January 20th.
Think Home Care Blog 
The real disappointment with Ma Health is the underlying belief that the needs of these children can be met by personal care attendants.
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